Providing support and information to patients with Wilson’s disease
Orphalan recognizes the outstanding efforts of the many organizations that have dedicated themselves to improving the awareness of Wilson’s disease and providing support to patients with Wilson’s disease. The following organizations provide important educational resources and support services for the Wilson’s disease community, as well as information about other rare diseases.
Brazilian Association for Wilson Disease Patients
Brasil Associacao Brasileira dos Doentes de Wilson
Sonia Knopf / Maria Aparecida Mesquita Ribeiror
Rua Sao Joaquim, 188 Vila Galvao
CEP 07064-180 Guarulhos, S. Paulo, Brazil
Phone: 011-6451 7859
Bernard Pepin Association for Wilson Disease in France
Association Bernard Pepin Pour La Maladie de Wilson
Service de Neurologie
2 Rue Ambroise Paré
75475 Paris Cedex 10
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