Skip to main content

Why We Should Care About Rare Disease Research

“Access to life-saving or life-enhancing treatments should not be determined by the rarity of the disease; on the contrary, our greater understanding today of precise and predictive medicine should encourage us to do more with small patient populations.”

This was the message from our CEO, Naseem Amin, who authored an insightful article for Life Science Leader, on why we should care about rare disease research. Drawing from his extensive experience, he discusses the advances that are making it easier to personalize approaches to rare disease treatment, and the challenges of building an evidence base.  

Read the full article to learn more: